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Welcome Do I Have CGD? After Being Diagnosed General Information about CGD Doctor Visits & Hospitalizations Specific Infecting Organisms Drug Therapies Your Time in the Hospital Support for the Patient Services for the Patient Sibling Support Bereavement Fundraising Donation Suggestions Links Contact & Nonprofit Info |
Contact & Nonprofit Information
Contact information:
Chronic Granulomatous Disease Association, Inc.
c/o Mary Hurley 2616 Monterey Rd. San Marino, CA 91108-1646 (626) 441-4118 cgda@socal.rr.com (new) www.cgdassociation.org The Chronic Granulomatous Disease Association, Inc. is an IRC 501C(3) nonprofit corporation, and all donations are tax deductible. 100% of your donations go toward CGD research. We receive no salaries or pay any rent. All services without charge.
Time to Update the CGD Association’s Questionnaire
If you or your child has been definitely diagnosed with CGD and have previously filled out the CGD Association’s Questionnaire, we would greatly appreciate it if you would update your information – dates of illnesses, infecting organism, type and site of infection. Please, if there has been a death, let us know. We care.
If you or your child has been definitely diagnosed with CGD and have not filled out the CGD Association’s Questionnaire, we would greatly appreciate if you could fill one out. Please request one and we’ll put it in the mail. The questionnaires are a tremendous help in linking patients with similar illnesses or infecting organisms or in the same geographical proximity. If you have been corresponding with other CGD families, you must agree that there are many super, caring families out there - the absolute best!
Currently there are over 1000 CGD patients from around the world on our database, so it is essential to keep tract of where you are and especially how you are doing.
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